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Research and Discovery

Patient Involvement in Research Studies

Patient participation -- A critical ingredient for successful clinical research

The extensive archives of Health Politics with Dr. Mike Magee, a popular weekly Internet-based electronic media program that explores complex issues of health care policy and public health, have been made available to Access Excellence. The topics and materials selected by AE's editors address National Science Education Standards and/or National Health Education Standards, are included in middle and high school science and health curricula, and are of particular relevance to middle and high school teachers and learners.

Presentation: (10/15/2003)

Discussion Questions:

  1. In a recent poll of cancer patients, what percentage was unaware that participation in a clinical trial was an option?
  2. How do patients learn about clinical trials?
  3. What percent of clinical trials actually start on schedule?
  4. What are the pros and cons of participation in clinical research studies?
  5. Approximately what percent of patients that were approached actually participated in clinical research trials?

Related Links

Introduction to Clinical Trials (NIH)
An introduction to Clinical Trials and information on why patients should participate in them.

Clinical Trials (NCI)
The National Cancer Institute helps find clinical trials and provides clinical trial educational materials for patients, health professionals and the general public.

NIH Clinical trials: Various Factors Affect Patient Participation (GAO
This 1999 Report United States General Accounting Office Report to Congressional Requesters describes the factors that influence patient participation in clinical trials (PDF).

Lymphoma organization (Patients Against Lymphoma)
This patient-centered group explains the importance of increasing participation in clinical trials to make progress in treating lymphomas, the challenges of identifying which clinical trial is in a patient's best interest, and how patients might proceed.

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